Ethical issues in genetic research: disclosure and informed consent Export

@article{citeulike:196666, abstract = {As research to correlate genetic status with predisposition to disease has accelerated, so has the concern that participation in such studies creates the risk of genetic discrimination and emotional distress. There is a need to broaden disclosure during the consent process to ensure that potential subjects understand these risks and other issues and to address them in the consent form. We describe the broad approach that we have taken in regard to disclosure and consent in gene mapping studies.}, address = {Shriver Center for Mental Retardation, Waltham, Massachusetts 02154, USA.}, author = {Reilly, Philip R. and Boshar, Mark R. and Holtzman, Steven H.}, citeulike-article-id = {196666}, citeulike-linkout-0 = {http://dx.doi.org/10.1038/ng0197-16}, citeulike-linkout-1 = {http://dx.doi.org/10.1038/ng0197-16}, citeulike-linkout-2 = {http://view.ncbi.nlm.nih.gov/pubmed/8988163}, citeulike-linkout-3 = {http://www.hubmed.org/display.cgi?uids=8988163}, day = {01}, doi = {10.1038/ng0197-16}, issn = {1061-4036}, journal = {Nature Genetics}, keywords = {disclosure-research-results}, month = {January}, number = {1}, pages = {16--20}, posted-at = {2005-07-11 20:58:30}, priority = {2}, publisher = {Nature Publishing Group}, title = {Ethical issues in genetic research: disclosure and informed consent}, url = {http://dx.doi.org/10.1038/ng0197-16}, volume = {15}, year = {1997} }

TY - JOUR ID - citeulike:196666 L3 - citeulike-article-id:196666 N2 - As research to correlate genetic status with predisposition to disease has accelerated, so has the concern that participation in such studies creates the risk of genetic discrimination and emotional distress. There is a need to broaden disclosure during the consent process to ensure that potential subjects understand these risks and other issues and to address them in the consent form. We describe the broad approach that we have taken in regard to disclosure and consent in gene mapping studies. IS - 1 JF - Nature Genetics SN - 1061-4036 AD - Shriver Center for Mental Retardation, Waltham, Massachusetts 02154, USA. EP - 20 TI - Ethical issues in genetic research: disclosure and informed consent PB - Nature Publishing Group VL - 15 SP - 16 KW - disclosure-research-results AU - Reilly, Philip AU - Boshar, Mark AU - Holtzman, Steven PY - 1997/01/01/ UR - http://dx.doi.org/10.1038/ng0197-16 ER -