Unexpected findings in identifiable stored blood samples after analysis without consent: moral arguments for and against disclosure. Export

@article{citeulike:236140, abstract = {Obtaining informed consent for using blood samples in research is mandatory. However, sometimes no consent is obtained for analysis of identifiable blood samples in a second study. As a result, a moral dilemma raises in case a possibly pathogenic mutation is found. Should the involved person be informed that such a mutation has been detected? We present a case in which this problem occurred and discuss arguments for and against information disclosure.}, address = {Department of Ethics, Philosophy and History of Medicine, University Medical Center Nijmegen, The Netherlands.}, author = {Verweij, M. F. and Hamel, B. C.}, citeulike-article-id = {236140}, citeulike-linkout-0 = {http://view.ncbi.nlm.nih.gov/pubmed/12150210}, citeulike-linkout-1 = {http://www.hubmed.org/display.cgi?uids=12150210}, issn = {1015-8146}, journal = {Genet Couns}, keywords = {disclosure-research-results}, number = {2}, pages = {115--121}, posted-at = {2005-07-11 21:02:07}, priority = {2}, title = {Unexpected findings in identifiable stored blood samples after analysis without consent: moral arguments for and against disclosure.}, url = {http://view.ncbi.nlm.nih.gov/pubmed/12150210}, volume = {13}, year = {2002} }

TY - JOUR ID - citeulike:236140 L3 - citeulike-article-id:236140 N2 - Obtaining informed consent for using blood samples in research is mandatory. However, sometimes no consent is obtained for analysis of identifiable blood samples in a second study. As a result, a moral dilemma raises in case a possibly pathogenic mutation is found. Should the involved person be informed that such a mutation has been detected? We present a case in which this problem occurred and discuss arguments for and against information disclosure. IS - 2 JF - Genet Couns SN - 1015-8146 AD - Department of Ethics, Philosophy and History of Medicine, University Medical Center Nijmegen, The Netherlands. EP - 121 TI - Unexpected findings in identifiable stored blood samples after analysis without consent: moral arguments for and against disclosure. VL - 13 SP - 115 KW - disclosure-research-results AU - Verweij, MF AU - Hamel, BC PY - 2002/// UR - http://view.ncbi.nlm.nih.gov/pubmed/12150210 ER -