PredictER's disclosure [19 articles] Export

Recent papers added to PredictER's library classified by the tag disclosure. You can also see everyone's disclosure.

	Disclosure and rationality: comparative risk information and decision-making about prevention. [My Copy] Theoretical medicine and bioethics, Vol. 30, No. 3. (2009), pp. 199-213. by Peter H. Schwartz posted to risk-and-behavior risk disclosure decision-making by PredictER on 2009-09-11 17:24:13 as
	Is it ethical to deny genetic research participants individualised results? [My Copy] Journal of medical ethics, Vol. 35, No. 4. (April 2009), pp. 209-213. by P. Affleck posted to communication disclosure genetic-research by PredictER on 2009-04-06 14:14:31 as
	Communicating genetic information in the family: enriching the debate through the notion of integrity [My Copy] Medicine, Health Care and Philosophy by Paula Boddington, Maggie Gregory posted to disclosure ethical-issues genetic-information integrity by PredictER on 2008-04-13 21:58:51 as along with 1 person annaszuto
	Diffusion of information about genetic risk within families. [My Copy] Neuromuscular disorders : NMD, Vol. 3, No. 5-6. (v 1993), pp. 571-574. by S. Ayme, G. Macquart-Moulin, C. Julian-Reynier, F. Chabal, F. Giraud posted to disclosure genetic-information genetic-testing by PredictER on 2008-04-08 22:39:49 as
	Is it ethical to keep interim findings of randomised controlled trials confidential? [My Copy] Journal of medical ethics, Vol. 34, No. 3. (March 2008), pp. 198-201. by F. G. Miller, D. Wendler posted to confidentiality disclosure research-ethics by PredictER on 2008-04-04 15:51:19 as along with 1 person jasonbobe
	Offering results to research subjects: U.S. Institutional Review Board policy. [My Copy] Account Res, Vol. 14, No. 4. (c 2007), pp. 255-267. by C. Kozanczyn, K. Collins, C. V. Fernandez posted to disclosure irb research-ethics by PredictER on 2008-03-05 02:04:47 as along with 1 person and 1 group lilith 8_01
	Duty to disclose what? Querying the putative obligation to return research results to participants [My Copy] J Med Ethics, Vol. 34, No. 3. (1 March 2008), pp. 210-213. by F. A. Miller, R. Christensen, M. Giacomini, J. S. Robert posted to disclosure research-ethics research-participants by PredictER on 2008-03-05 01:56:31 as along with 2 people lilith jasonbobe
	The micropolitics of responsibility vis-à-vis autonomy: parental accounts of childhood genetic testing and (non)disclosure [My Copy] Sociology of Health & Illness, Vol. 30, No. 2. (2008), pp. 255-271. by Michael A. Ayllon, Srikant Sarangi, Angus Clarke posted to autonomy disclosure genetic-testing pediatric-research by PredictER on 2008-02-20 02:37:30 as
	Disclosure of genetic information obtained through research. [My Copy] Genet Test, Vol. 8, No. 3. (2004), pp. 347-355. by K. A. Quaid, N. M. Jessup, E. M. Meslin posted to disclosure elsi genetic-information indiana-university privacy by PredictER on 2008-01-04 20:38:11 as along with 3 people and 1 group ladygoat cgreal jasonbobe CGREL
	Information Disclosure in Population-Based Research Involving Genetics: A Framework for the Practice of Ethics in Epidemiology. [My Copy] Ann Epidemiol (11 December 2007) by Vicki L L. Kristman, Nancy Kreiger posted to disclosure elsi epidemiology genetic-information genetic-research population-research by PredictER on 2007-12-22 00:20:46 as along with 1 person jasonbobe
	Disclosing individual genetic results to research participants. [My Copy] Am J Bioeth, Vol. 6, No. 6. (c 2006), pp. 8-17. by V. Ravitsky, B. S. Wilfond posted to disclosure duty-to-recontact genetic-research research-participants by PredictER on 2007-11-06 03:02:14 as
	Why tell asymptomatic children of the risk of an adult-onset disease in the family but not test them for it? [My Copy] J Med Ethics, Vol. 32, No. 11. (November 2006), pp. 639-642. by P. J. Malpas posted to disclosure families genetic-testing by PredictER on 2007-11-06 02:57:20 as
	Perceptions of potential donors in the Swedish public towards information and consent procedures in relation to use of human tissue samples in biobanks: a population-based study. [My Copy] Scand J Public Health, Vol. 35, No. 2. (2007), pp. 148-156. by A. Kettis-Lindblad, L. Ring, E. Viberth, M. G. Hansson posted to attitudes biobanks disclosure informed-consent sweden by PredictER on 2007-11-03 01:03:09 as
	Family communication regarding inherited high cholesterol: Why and how do patients disclose genetic risk? [My Copy] Soc Sci Med (2007) by Van Den Nieuwenhoff, Ilse Mesters, Caroline Gielen, Nanne De Vries posted to cardiovascular-disease disclosure risk by PredictER on 2007-10-03 04:41:31 as
	Should healthcare providers have a duty to warn family members of individuals with an HNPCC-causing mutation?: A survey of patients from the Ontario Familial Colon Cancer Registry. [My Copy] Journal of medical genetics, Vol. 44 (Jun 2007), pp. 404-407. by Kelly Kohut, Michael Manno, Steven Gallinger, Mary Esplen posted to attitudes disclosure genetic-testing letter by PredictER on 2007-10-03 04:41:31 as
	Communicating genetic information in the family: the familial relationship as the forgotten factor. [My Copy] Journal of medical ethics, Vol. 33 (Jul 2007), pp. 390-393. by Roy Gilbar posted to disclosure genetic-information medical-records by PredictER on 2007-10-03 04:41:31 as
	Communicating genetic information in families - a review of guidelines and position papers [My Copy] Eur J Hum Genet, Vol. 15 (Mar 2007), pp. 612-618. by Laura Forrest, Martin Delatycki, Loane Skene, Maryanne Aitken posted to disclosure genetic-information review by PredictER on 2007-10-03 04:41:30 as
	How does the collection of genetic test results affect research participants? [My Copy] Am J Med Genet A (Jul 2007) by David Wendler, Rebecca Pentz posted to disclosure genetic-information genetic-research genetic-testing participants by PredictER on 2007-10-03 04:41:30 as
	Communicating genetic information in the family: the familial relationship as the forgotten factor. [My Copy] J Med Ethics, Vol. 33, No. 7. (July 2007), pp. 390-393. by R. Gilbar posted to disclosure genetic-information by PredictER on 2007-07-06 00:30:57 as along with 1 person jasonbobe

Note: You may cite this page as: http://www.citeulike.org/user/PredictER/tag/disclosure

biobanks	86
genetic-testing	81
genetic-research	71
elsi	58
attitudes	45
genetic-information	42
informed-consent	39
genomics	34
personalized-medicine	25
privacy	25
research-ethics	25
ethical-issues	22
policy	21
risk	20
disclosure	19
cancer	18
legislation-and-jurisprudence	18
genetic-medicine	15
pediatric-research	14
direct-to-consumer	13
pgd	12
pharmacogenetics	12
genetic-counseling	11
ownership	11
predictive-health	11
irb	10
law	10
medical-records	10
reproductive-technologies	10
review	10
survey-research	10
dna	9
pediatrics	9
risk-and-behavior	9
discrimination	8
gwas	8
insurance	8
pharmacogenomics	8
public-engagement	8
research-participants	8
translational-research	8
decision-making	7
epidemiology	7
gina	7
health-professionals	7
tissue	7
bioethics	6
editorial	6
ethnicity	6
genetic-databases	6
international-research	6
letter	6
participants	6
patients	6
population-research	6
biotechnology	5
clinical-ethics	5
confidentiality	5
families	5
genetics	5
hipaa	5
neurology	5
newborn-screening	5
personal-genomics	5
property	5
public-health	5
public-opinion	5
religion	5
addiction	4
african-americans	4
autonomy	4
cardiovascular-disease	4
clinical-trials	4
comment	4
commerce	4
databases	4
eugenics	4
european-union	4
human-rights	4
huntingtons	4
industry	4
patents	4
population-genetics	4
race	4
reproductive-medicine	4
research-design	4
anonymized-research	3
biomarkers	3
blood	3
business-ethics	3
communication	3
cystic-fibrosis	3
data-mining	3
developing-countries	3
eugenic-abortion	3
europe	3
gender	3
genetic-discrimination	3
indiana-university	3
indigenous-populations	3
justice	3
longitudinal-studies	3
nutrigenomics	3
psychiatric-research	3
psychiatry	3
public-policy	3
survey	3
uk	3
women	3
alzheimers	2
asthma	2
case-studies	2
cohorts	2
commentary	2
community	2
continental-population-groups	2
drug-development	2
duty-to-recontact	2
employment	2
evidenced-based-medicine	2
genetic-engineering	2
genetic-enhancement	2
genetic-resources	2
genome-sequencing	2
germany	2
governance	2
health-information	2
hemochromatosis	2
hugenet	2
human-genome-project	2
intellectual-property	2
interdisciplinary-research	2
islam	2
japan	2
legislation	2
native-americans	2
news	2
nhanes	2
nursing	2
organization-and-administration	2
oversight	2
predicter	2
public-participation	2
research-methodology	2
resource-sharing	2
smoking	2
sweden	2
uk-biobank	2
unesco	2
venter	2
web-30	2
academic-literature	1
academic-networks	1
advisory	1
advocacy	1
alder-hey	1
allocation-of-care	1
als	1
asia	1
australia	1
bibliography	1
bidil	1
biodiversity	1
bioinformatics	1
birth-defects	1
blanket-consent	1
book-chapter	1
book-review	1
brca	1
canada	1
case-control-study	1
caulfield-t	1
cdc	1
china	1
conflict-of-interest	1
connotea	1
consultation	1
cord-blood	1
counseling	1
deafness	1
demographics	1
diabetes	1
diagnostic-imaging	1
disability	1
disability-insurance	1
empirical-ethics	1
encode	1
engaging-community	1
enhancement	1
environmental-health	1
equality	1
ethics	1
evidence-based-medicine	1
fda	1
fmri	1
focus-groups	1
fragile-x	1
france	1
future	1
genealogy	1
gene-environment-interaction	1
groups	1
haemochromatosis	1
hapmap	1
hawaaiians	1
health-costs	1
health-insurance	1
health-policy	1
health-services-accessibility	1
helsinki	1
history-of-genetics	1
history_science	1
hmo	1
honore	1
hugo	1
iceland	1
india	1
indiana	1
informatics	1
information-technology	1
integrity	1
interview	1
interviews	1
israel	1
ivf	1
liability	1
malpractice	1
marketing	1
mass-media	1
metrics	1
mitochondrial-disorders	1
molecular-diagnosis	1
myriad	1
myspace	1
nanotechnology	1
netherlands	1
newgeneris	1
nicotine	1
nih	1
online-resources	1
organ-donation	1
outcomes	1
pancreatitis	1
parkinson	1
ped	1
personal-genome-project	1
politics	1
prediction	1
predisposition	1
pregnancy	1
pregnancy-rate	1
psychiatrics	1
public-relations	1
questionnaires	1
re-consent	1
reproduction	1
research-efficiency	1
research-standards	1
science-communication	1
screening	1
semantic-web	1
sibling-donors	1
social-bookmarking	1
social-networks	1
stem-cells	1
stigma	1
students	1
surveys	1
taiwan	1
taxes	1
transplants	1
trends	1
turkey	1
uganda	1
university-industry-research-relationships	1
veterans-affairs	1
warfarin	1
web-20	1

PredictER's disclosure [19 articles] Export

PredictER's tags