Is it ethical to deny genetic research participants individualised results? Export

@article{8380, abstract = {This article examines a key ethical concern that has arisen in the work of the international research consortium GenoMEL (http://www.genomel.org) and that has relevance to all genetic research in humans. The question is whether it is ethical to deny research participants the opportunity to receive individualised genetic results obtained from the biological samples they provide. Where those results are of clinical importance, a "respect for persons" requirement would make the offering of those results imperative. However, where those results are of uncertain clinical value, the picture is less clear. This paper argues that researchers may not be ethically obliged to offer such results to their participants, because of competing ethical demands.}, address = {Leeds Institute of Molecular Medicine, St James's University Hospital, UK. p.a.affleck@leeds.ac.uk}, author = {Affleck, P.}, citeulike-article-id = {6076102}, citeulike-linkout-0 = {http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=19332574}, comment = {eng ---=note-separator=--- Journal Article Research Support, Non-U.S. Gov't England ---=note-separator=--- 19332574 ---=note-separator=--- Is it ethical to deny genetic research participants individualised results? ---=note-separator=--- Apr}, isbn = {1473-4257 (Electronic)}, journal = {Journal of medical ethics}, keywords = {as, disclosure-ethics, duty, experimentation-ethics, file-import-09-11-05, genetic, guidelines, human, humans, recontact-ethics, research, research-ethics, subjects, to, topic, truth}, number = {4}, pages = {209-13+}, posted-at = {2009-11-05 18:50:08}, priority = {2}, title = {Is it ethical to deny genetic research participants individualised results?}, url = {http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=19332574}, volume = {35}, year = {2009} }

TY - JOUR ID - 8380 L3 - citeulike-article-id:6076102 N2 - This article examines a key ethical concern that has arisen in the work of the international research consortium GenoMEL (http://www.genomel.org) and that has relevance to all genetic research in humans. The question is whether it is ethical to deny research participants the opportunity to receive individualised genetic results obtained from the biological samples they provide. Where those results are of clinical importance, a "respect for persons" requirement would make the offering of those results imperative. However, where those results are of uncertain clinical value, the picture is less clear. This paper argues that researchers may not be ethically obliged to offer such results to their participants, because of competing ethical demands. IS - 4 JF - Journal of medical ethics SN - 1473-4257 (Electronic) AD - Leeds Institute of Molecular Medicine, St James's University Hospital, UK. p.a.affleck@leeds.ac.uk TI - Is it ethical to deny genetic research participants individualised results? VL - 35 SP - 209-13 KW - as KW - disclosure-ethics KW - duty KW - experimentation-ethics KW - file-import-09-11-05 KW - genetic KW - guidelines KW - human KW - humans KW - recontact-ethics KW - research KW - research-ethics KW - subjects KW - to KW - topic KW - truth N1 - eng N1 - Journal Article Research Support, Non-U.S. Gov't England N1 - 19332574 N1 - Is it ethical to deny genetic research participants individualised results? N1 - Apr AU - Affleck, P PY - 2009/// UR - http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=19332574 ER -