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	Is it ethical to deny genetic research participants individualised results? [My Copy] Journal of medical ethics, Vol. 35, No. 4. (2009), 209-13. by P. Affleck posted to truth topic to subjects research-ethics research recontact-ethics humans human guidelines genetic file-import-09-11-05 experimentation-ethics duty disclosure-ethics as by cgreal on 2009-11-05 18:50:08 as
	'I don't see any point in telling them': attitudes to sharing genetic information in the family and carrier testing of relatives among British Pakistani adults referred to a genetics clinic [My Copy] Ethnicity & Health, Vol. 14, No. 2. (2009), 205-224. by Alison Shaw, Jane A. Hurst posted to abnormalities british carrier chromosome communication diagnosis disclosure disorders families family genetic genetics heredity human in pakistanis prenatal testing the by cgreal on 2009-06-01 16:13:19 as
	Balancing Uncertain Risks and Benefits in Human Subjects Research [My Copy] Science, Technology, & Human Values, Vol. 34, No. 3. (2009), 337-364. by Richard Barke posted to benefits ethics human research risks subjects uncertainty by cgreal on 2009-06-01 16:12:57 as
	Voluntariness OF CONSENT TO RESEARCH [My Copy] Hastings Center Report, Vol. 39, No. 1. (2009), 30-39. by Paul S. Appelbaum, Charles W. Lidz, Robert Klitzman posted to care consent ethics experimentation human in informed law medical medicine research by cgreal on 2009-06-01 16:12:57 as
	Social and Ethical Implications of Genomics, Race, Ethnicity, and Health Inequities [My Copy] Seminars in Oncology Nursing, Vol. 24, No. 4. (2008), 254-261. by Vence L. Bonham, Sarah Knerr posted to clinical decision-making disparities genetics health human race by cgreal on 2009-06-01 16:12:54 as
	Additional protocol to the convention on human rights and biomedicine, concerning genetic testing for health purposes [My Copy] Law Hum Genome Rev, No. 28. (2008), 219-42. posted to codes ethics genetic human humans rights screening by cgreal on 2009-06-01 16:12:54 as
	Chimeras and human dignity [My Copy] Kennedy Inst Ethics J, Vol. 18, No. 4. (2008), 331-46. by I. de Melo-Martin posted to analysis chimera dehumanization ethical ethics genetic human humans research rights by cgreal on 2009-06-01 16:12:54 as
	Genetic screening: programs, principles, and research--thirty years later. Reviewing the recommendations of the Committee for the Study of Inborn Errors of Metabolism (SIEM) [My Copy] Public Health Genomics, Vol. 12, No. 2. (2009), 105-11. by A. P. Simopoulos posted to committees counseling diagnosis diseases ethics experimentation genetic genetics human humans inborn infant neonatal newborn opinion phenylketonuriasdiagnosis public research screeningethics standards states united variation by cgreal on 2009-06-01 16:12:51 as
	Experiences of Genetic Counseling for BRCAÂ½ Among Recently Diagnosed Breast Cancer Patients: A Qualitative Inquiry [My Copy] Journal of Psychosocial Oncology, Vol. 26, No. 4. (2008), 33-52. by Susan T. Vadaparampil, Gwendolyn P. Quinn, Jennifer P. Brzosowicz, Cheryl A. Miree posted to abnormalities breast cancer chromosome counseling diagnosis educational genetic health human needs patients qualitative surgery testing by cgreal on 2009-06-01 16:12:47 as
	Understanding the Human Genome Project: a biographical approach [My Copy] New Genetics & Society, Vol. 27, No. 4. (2008), 353-376. by Hub Zwart posted to autobiographies genome human micro-epistemology project by cgreal on 2009-06-01 16:12:34 as
	How the Powerful Decide: Access to Research Participation by those at the Margins [My Copy] American Journal of Community Psychology, Vol. 42, No. 1/2. (2008), 79-93. by Katherine E. Mcdonald, Christopher B. Keys posted to autonomy communities community developmental disabilities ecology ego emotions empowerment ethics geography human life marginalization mental participation people populations psychology research social vulnerable with by cgreal on 2009-06-01 16:11:59 as
	Long-term follow-up after diagnosis resulting from newborn screening: statement of the US Secretary of Health and Human Services' Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children [My Copy] Genet Med, Vol. 10, No. 4. (2008), 259-61. by A. R. Kemper, C. A. Boyle, J. Aceves, et al.D. Dougherty, J. Figge, J. L. Fisch, A. R. Hinman, C. L. Greene, C. A. Kus, J. Miller, D. Robertson, J. Telfair, B. Therrell, M. Lloyd-Puryear, P. C. van Dyck, R. R. Howell posted to caremethods child dept disease diseases genetic genetics guidelines health human humans inborn infant long-term management methods neonatal newborn practice screening services states topic united by cgreal on 2009-06-01 16:11:34 as
	Is Longer Always Better? [My Copy] Hastings Center Report (2008), 10-11. by Ezekiel J. Emanuel, Christine Grady posted to boards consent editorials experimentation human in informed institutional law medical medicine research review by cgreal on 2009-06-01 16:11:30 as
	Ethics, Evidence, and Cost in NEWBORN SCREENING [My Copy] Hastings Center Report, Vol. 38, No. 3. (2008), 23-31. by Mary A. Baily, Thomas H. Murray posted to ethics evidence-based examinations genome human infants institute medical medicine national newborn policy research screening states united us by cgreal on 2009-06-01 16:11:30 as
	Enhancement and the ethics of development [My Copy] Kennedy Inst Ethics J, Vol. 18, No. 1. (2008), 1-34. by A. Buchanan posted to biomedical change characteristics child development efficiencyethics enhancement enhancementethics ethics eugenics genetic gifted human humans moral obligations planning social by cgreal on 2009-06-01 16:11:29 as
	Sustaining Public Trust: Falling Short in the Protection of Human Research Participants [My Copy] Hastings Center Report, Vol. 38, No. 3. (2008), 8-9. by Anna C. Mastroianni posted to administration drug ethics experimentation food human in medical medicine public research states support trust united by cgreal on 2009-06-01 16:11:29 as
	Governance-by-standards in the field of stem cells: managing uncertainty in the world of â€œbasic innovationâ€ [My Copy] New Genetics & Society, Vol. 27, No. 2. (2008), 99-111. by Andrew Webster, Lena Eriksson posted to cells educational embryo embryonic empirical fieldwork governance human medicine method methodology research standards stem by cgreal on 2009-06-01 16:11:28 as
	The UK Stem Cell Bank as performative architecture [My Copy] New Genetics & Society, Vol. 27, No. 2. (2008), 87-98. by Neil Stephens, Paul Atkinson, Peter Glasner posted to architecture bank britain cell cells culture embryo embryonic empirical human infertility lines methodology performative research stem sterility uk by cgreal on 2009-06-01 16:11:28 as
	May we scan your genome? As personal genetic testing takes off, some worry that marketing is getting ahead of science [My Copy] Newsweek, Vol. 151, No. 16. (2008), 44. by C. Kalb posted to care disease diseases ethics genetic genome health human humans inborndiagnosisgenetics marketing medical predisposition screening self services by cgreal on 2009-06-01 16:11:22 as
	The Human Genome Project: Implications for Families [My Copy] Health & Social Work, Vol. 33, No. 1. (2008), 73-76. by Virginia L. Miller, Angela M. Martin posted to disorders ethics family genetic genome human institute mapping national project research states united us by cgreal on 2009-06-01 16:11:20 as
	Reproductive Technology, Intent Parentage and Genetic "Manipulation" of Parental Roles [My Copy] American Journal of Family Law, Vol. 21, No. 4. (2008), 112-125. by John J. Zodrow posted to artificial birth donation donors etc human insemination mothers multiple organs parenting reproductive sperm surrogate technology tissues by cgreal on 2009-06-01 16:11:15 as
	The Role of Women's Relationships With Their Partners in Their Adjustment Following Prenatal Genetic Testing [My Copy] Journal of Applied Social Psychology, Vol. 38, No. 2. (2008), 482-512. by Lauren Humphreys, Mario Cappelli, Ethel Aronovitch, Judith Allanson, Alasdair G. Hunter posted to abnormalities adjustment aspects chromosome counseling diagnosis genetic human man-woman marital psychological relations relationships satisfaction by cgreal on 2009-06-01 16:11:15 as
	Managing self-responsibility through other-oriented blame: Family accounts of genetic testing [My Copy] Social Science & Medicine, Vol. 66, No. 7. (2008), 1521-1532. by Michael Arribas-Ayllon, Srikant Sarangi, Angus Clarke posted to abnormalities chromosome diagnosis england genetics health human research responsibility by cgreal on 2009-06-01 16:11:15 as
	Redefining a technology: public and private genetic testing in Aotearoa New Zealand [My Copy] Sociology of Health & Illness, Vol. 30, No. 3. (2008), 364-379. by Anne Scott, Rosemary Du Plessis posted to abnormalities administration care chromosome defining diagnosis genetic geneticisation health human medical new policy private provision public screening scripts sector service services social technological technologies technology testing zealand by cgreal on 2009-06-01 16:11:15 as
	Visions and Versions of Governing Biomedicine: Narratives on Power Structures, Decision-making and Public Participation in the Field of Biomedical Technology in the Austrian Context [My Copy] Social Studies of Science (Sage), Vol. 38, No. 2. (2008), 233-257. by Ulrike Felt, Maximilian Fochier, Astrid Mager, Peter Winkler posted to abnormalities austria biomedical biomedicine chromosome decision diagnosis discourse engineering etc governance human law legislation making medicine organizations organs participation policy public research social technology tissues transplantation by cgreal on 2009-06-01 16:11:14 as
	Intention to Communicate BRCA1/BRCA2 Genetic Test Results to the Family [My Copy] Journal of Family Psychology, Vol. 22, No. 2. (2008), 303-312. by Andrea M. Barsevick, Susan V. Montgomery, Karen Ruth, et al.Eric A. Ross, Brian L. Egleston, Ruth Bingler, John Malick, Suzanne M. Miller, Terrence P. Cescon, Mary B. Daly posted to abnormalities attitude behavior brca1brca2 breastovarian cancer chromosome communication control diagnosis family genes genetic hereditary human influence norms planned psychology relatives results social test theory women by cgreal on 2009-06-01 16:11:13 as
	The harm-benefit tradeoff in "bad deal" trials [My Copy] Kennedy Institute of Ethics journal, Vol. 17, No. 4. (2007), 321-50. by G. Nycum, L. Reid posted to altruism analysis clinical cost-benefit emotions ethics experimentationethics glioblastomageneticstherapy human humans research subjects therapeutic therapyethics topicethics trials uncertainty by cgreal on 2009-06-01 16:11:12 as
	How Talking Became Human Subjects Research: The Federal Regulation of the Social Sciences, 1965-1991 [My Copy] Journal of Policy History, Vol. forthcoming by Zachary M. Schrag posted to anthropology boards human institutional regulation review social sociology subjects by cgreal on 2009-06-01 16:11:11 as
	CHANGING THE SUBJECT: SCIENCES, SUBJECTIVITY, AND THE STRUCTURING OF ETHICAL IMPLICATIONS [My Copy] Advances in Medical Sociology, Vol. 9 (2008), 323-347. by Sara Shostak, Erin Rehel posted to biology body care environmental genetics health high human medical nanotechnology public scientists technology by cgreal on 2009-06-01 16:11:10 as
	Biobanks: transnational, European and global networks [My Copy] Briefings in functional genomics & proteomics, Vol. 6, No. 3. (2007), 193-201. by M. Asslaber, K. Zatloukal posted to analysis array banks base biological databases europe genetic genome genomics human humans oligonucleotide research sequence specimen tissue by cgreal on 2009-06-01 16:11:10 as
	Mixed Race: Understanding Difference in the Genome Era [My Copy] Social Forces, Vol. 86, No. 2. (2007), 795-820. by Elizabeth M. Phillips, Adebola Odunlami, Vence L. Bonham posted to aspects genetics genomes human identity mixed multiculturalism people psychology racially research sciences social states united variation by cgreal on 2009-06-01 16:11:09 as
	Ethical and philosophical consideration of the dual-use dilemma in the biological sciences [My Copy] Science and engineering ethics, Vol. 13, No. 4. (2007), 523-80. by S. Miller, M. J. Selgelid posted to biological biomedical engineeringethics experimentation genetic human humans jurisprudence measures philosophy researchethicslegislation security states united warfare by cgreal on 2009-06-01 16:11:09 as
	Genetic enhancement--a threat to human rights? [My Copy] Bioethics, Vol. 22, No. 1. (2008), 1-7. by E. Fenton posted to characteristics enhancementethics genetic human humans rights by cgreal on 2009-06-01 16:11:09 as
	Our genes are not our destiny: incorporating molecular medicine into clinical practice [My Copy] Journal of evaluation in clinical practice, Vol. 14, No. 1. (2008), 94-102. by S. J. Genuis posted to administration biology clinical diagnostic evidence-based genetic genome health human humans medicine medicineorganization molecular pharmacogenetics policy screening techniques by cgreal on 2009-06-01 16:11:08 as
	The Environmental Genome Project: phase I and beyond [My Copy] Molecular interventions, Vol. 4, No. 3. (2004), 147-56. by S. H. Wilson, K. Olden posted to aryldialkylphosphatasegenetics bioethics databases diseaseepidemiologygenetics environment environmental exposure genetic genome health human humans institute leukemiagenetics methylenetetrahydrofolate nadph2genetics national nucleotide polymorphism predisposition reductase sciences single states united us by cgreal on 2009-06-01 16:11:07 as
	Parents' perspectives on having their children interviewed for research [My Copy] Research in nursing & health, Vol. 31, No. 1. (2008), 4-11. by E. K. Hadley, C. A. Smith, A. M. Gallo, D. B. Angst, K. A. Knafl posted to adolescent adult advocacyethicspsychology aged attitude chicago child consentethicspsychology diseases ethics experimentationethics female genetic health human humans inbornpsychology interviews male methodology middle nursing parental parentspsychology patient principle-based professional-family psychologyethics qualitative questionnaires relationsethics relationsethicspsychology research researcher-subject selectionethics subjectspsychology topic by cgreal on 2009-06-01 16:11:02 as
	'I'm Happy if I Can Help'. Public views on future medicines and gene-based therapy in Iceland [My Copy] Community genetics, Vol. 11, No. 1. (2008), 2-10. by J. M. Traulsen, I. Bjornsdottir, A. B. Almarsdottir posted to adult aged attitude databases education environment ethics factual female genome health human humans iceland male medical middle opinion public therapyethicsutilization by cgreal on 2009-06-01 16:11:02 as
	The ambiguous meanings of the racial/ethnic categories routinely used in human genetics research [My Copy] Social Science & Medicine, Vol. 66, No. 2. (2008), 349-361. by Linda M. Hunt, Mary S. Megyesi posted to care discrimination disparities ethnicity genetics health human in medical race variation by cgreal on 2009-06-01 16:10:57 as
	Facilitating choice, framing choice: Staff views on widening the scope of preimplantation genetic diagnosis in the UK [My Copy] Social Science & Medicine, Vol. 65, No. 6. (2007), 1094-1105. by Clare Williams, Kathryn Ehrich, Bobbie Farsides, Rosamund Scott posted to abnormalities chromosome conception diagnosis fertility genetic human preimplantation prenatal by cgreal on 2009-06-01 16:10:56 as
	Scientists, bioethics and democracy: the Italian case and its meanings [My Copy] Journal of medical ethics, Vol. 33, No. 6. (2007), 349-52. by G. Corbellini posted to assistedethicslegislation bioethics biomedical culture democracy freedom human humans italy jurisprudence morals politics religion reproductive researchethics rights techniques by cgreal on 2009-06-01 16:10:54 as
	The Once and Future "Apeman": Chimeras, Human Evolution, and Disciplinary Coherence [My Copy] Current Anthropology, Vol. 48, No. 5. (2007), 637-652. by Joseph S. Alter posted to anthropology biology evolution genetic human hybridity life natural phylogeny physical psychology sciences selection social sociobiology by cgreal on 2009-06-01 16:10:54 as
	Drinking expectancies and motives: a genetic study of young adult women [My Copy] Addiction, Vol. 103, No. 2. (2008), 194-204. by Arpana Agrawal, Danielle M. Dick, Kathleen K. Bucholz, et al.Pamela A. Madden, Lynne M. Cooper, Kenneth J. Sher, Andrew C. Heath posted to alcohol aspects behavior behavioral binge drinking environmental expectancy genetic human influence influences motive patterns psychology research social twin twins women young by cgreal on 2009-06-01 16:10:53 as
	GENETIC SCREENING AND SELFHOOD [My Copy] Australian Feminist Studies, Vol. 23, No. 55. (2008), 43-55. by Catherine Mills posted to abnormalities bioethics biotechnology chemical chromosome debates debating diagnosis diseases disorders embryos engineering genetic health human by cgreal on 2009-06-01 16:10:52 as
	A place for genetic uncertainty: Parents valuing an unknown in the meaning of disease [My Copy] Social Science & Medicine, Vol. 65, No. 6. (2007), 1082-1093. by Ian Whitmarsh, Arlene M. Davis, Debra Skinner, Donald B. Bailey posted to abnormalities children chromosome diagnosis fragile human in klinefelters syndrome turners x by cgreal on 2009-06-01 16:10:51 as
	Genetic profiling and tailored therapy in asthma: are we there yet? [My Copy] Current opinion in molecular therapeutics, Vol. 9, No. 6. (2007), 528-37. by N. L. Lugogo, G. S. Ginsburg, L. G. Que posted to adrenergic asthmadrug betagenetics expression genetic genome genotype human humans pharmacogeneticstrends polymorphism profiling receptors therapygenetics by cgreal on 2009-06-01 16:10:51 as
	Structural genomic variation and personalized medicine [My Copy] The New England journal of medicine, Vol. 358, No. 7. (2008), 740-1. by C. Lee, C. C. Morton posted to analysis chromosome dnaeconomicsmethods genetics genome genomics human humans hypertensiongeneticstherapy mapping mutation pharmacogenetics sequence variation by cgreal on 2009-06-01 16:10:50 as
	Mixed race: Understanding difference in the genome era [My Copy] Social Forces, Vol. 86, No. 2. (2007), 795-820. by E. M. Phillips, A. O. Odunlami, V. L. Bonham posted to 2000 census complexity disease disparities diversity ethnicity genetic health heart-failure history human identities raceethnicity research risk by cgreal on 2009-06-01 16:10:50 as
	Waiting for the genetic revolution [My Copy] BMJ (Clinical research ed, Vol. 336, No. 7634. (2008), 22. by D. Kamerow posted to factors forecasting genetics genome human humans medicaltrends risk by cgreal on 2009-06-01 16:10:48 as
	Genome-wide association: which do you want first: the good news, the bad news, or the good news? [My Copy] Diabetes, Vol. 56, No. 12. (2007), 2844-8. by K. D. Taylor, J. M. Norris, J. I. Rotter posted to 2genetics diabetes disease ethnic genetic genome groupsgenetics human humans mellitus nucleotide polymorphism predisposition single states type united by cgreal on 2009-06-01 16:10:43 as
	The rhetoric of race in breast cancer research [My Copy] Patterns of Prejudice, Vol. 40, No. 4/5. (2006), 461-480. by Kelly E. Happe posted to abnormalities african african-american american breast cancer chromosome diagnosis disparities genetic genomics health human humanities hygiene medical medicine race rhetoric testing women womens by cgreal on 2009-06-01 16:10:30 as

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1-genetictestingalzheimerdisease1984-1995	14
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file-import-09-11-05	11
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1-ethicscodesingenetics	11
diseasegenetics	11
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3-somaticcellgenetherapy1991-1992	11
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anthropology	11
3-uniquealleles2004-2005	10
1-commercializationofgenetics1995-1998	10
sociology	10
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brca2	10
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brca1	9
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geneticsgenetics	9
parentspsychology	9
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1-eugenicstoday1998-2004	9
jurisprudencestandards	9
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cost	9
cystic	9
civil	9
identity	9
1-geneticepiethics1989-1998	9
reproducibility	9
public-health	9
linkage	8
groupgenetics	8
fetal	8
3-publicperceptions2004-2005	8
2-intellectualprosperitydna1977-1995	8
germany	8
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approvallegislation	8
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21st	8
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advocacy	8
1-biobanking2005	8
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failure	8
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1-genetictestingalzheimerdisease1996-2006	8
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1-environmentalgenomicproject1988-1999	8
illness	8
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2-posthuman2003	8
p-450	8
cytochrome	8
randomized	8
enhancementethics	8
etc	8
2-informedconsenttogeneticresearch2001-2000	8
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frequency	8
nucleic	8
2-hgihistoryscience2001-2004	8
3-populationscreening1992-1994	8
animal	7
3-prenataltesting1986-1989	7
statistical	7
beneficence	7
trends	7
2-hgdpissues1993-1999	7
programs	7
disordersdrug	7
3-somaticcellgenetherapy2000-2005	7
3-racegeneticshealthdisparitiesundated2	7
diabetes	7
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union	7
serotonin	7
isosorbide	7
3-prenataltestingundated	7
detection	7
neoplasms	7
disparities	7
cost-benefit	7
primary	7
focus	7
donation	7
3-prenataltesting1994-1996	7
2-pediatrictesting	7
new	7
experimentationethics	7
gender	7
letters	7
theoretical	7
criminal	7
proteinsgenetics	7
classification	7
tumor	7
1-elsigenericundated	7
receptors	7
2-homosexuality1984-1993	7
expectancy	7
selectionethics	7
theory	7
distribution	7
factual	7
direct-to-consumer	7
1-genetictestingundatedmaterial	7
3-populationscreening2001-2005	7
inhibitorsadverse	7
combinations	7
editor	7
legal	7
advertising	7
asian	7
mothers	7
engineeringethics	7
phenotype	7
2-intellectualprosperitydna2001-2005	7
womens	7
3-storedtissueresearch1990-1999	7
2-informedconsenttogeneticresearch1997-1992	7
engineeringethicslegislation	7
freedom	7
self	7
counselingethics	7
values	7
ethnology	7
array	6
therapymethods	6
therapygenetics	6

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