Research Ethics Recommendations for Whole-Genome Research: Consensus Statement

@article{citeulike:2594157, abstract = {[Excerpt:] The paper starts with initial considerations, including general recommendations about governance and the characterization of the research activities related to the whole genome. It is important to note that while there was consensus on all recommendations, there was a good deal of debate about the degree to which they satisfy existing ethical and legal norms [13]. All participants believed that we need both empirical research and continued conceptual analysis (Box 1). These are early days in the field of whole-genome research. Research ethics guidance is needed immediately, but we should continue to explore the ethical, legal, and social implications of this rapidly evolving field (Box 2). Indeed, the door must remain open for further reflection on these and other social concerns.}, author = {Caulfield, Timothy and Mcguire, Amy L. and Cho, Mildred and Buchanan, Janet A. and Burgess, Michael M. and Danilczyk, Ursula and Diaz, Christina M. and Fryer-Edwards, Kelly and Green, Shane K. and Hodosh, Marc A. and Juengst, Eric T. and Kaye, Jane and Kedes, Laurence and Knoppers, Bartha M. and Lemmens, Trudo and Meslin, Eric M. and Murphy, Juli and Nussbaum, Robert L. and Otlowski, Margaret and Pullman, Daryl and Ray, Peter N. and Sugarman, Jeremy and Timmons, Michael}, citeulike-article-id = {2594157}, doi = {10.1371/journal.pbio.0060073}, journal = {PLoS Biology}, keywords = {genetics, research-ethics}, month = {March}, number = {3}, pages = {e73+}, posted-at = {2008-05-15 18:54:58}, priority = {2}, title = {Research Ethics Recommendations for Whole-Genome Research: Consensus Statement}, url = {http://dx.doi.org/10.1371/journal.pbio.0060073}, volume = {6}, year = {2008} }

TY - JOUR ID - citeulike:2594157 L3 - citeulike-article-id:2594157 N2 - [Excerpt:] The paper starts with initial considerations, including general recommendations about governance and the characterization of the research activities related to the whole genome. It is important to note that while there was consensus on all recommendations, there was a good deal of debate about the degree to which they satisfy existing ethical and legal norms [13]. All participants believed that we need both empirical research and continued conceptual analysis (Box 1). These are early days in the field of whole-genome research. Research ethics guidance is needed immediately, but we should continue to explore the ethical, legal, and social implications of this rapidly evolving field (Box 2). Indeed, the door must remain open for further reflection on these and other social concerns. IS - 3 JF - PLoS Biology TI - Research Ethics Recommendations for Whole-Genome Research: Consensus Statement VL - 6 SP - e73 KW - genetics KW - research-ethics AU - Caulfield, Timothy AU - Mcguire, Amy AU - Cho, Mildred AU - Buchanan, Janet AU - Burgess, Michael AU - Danilczyk, Ursula AU - Diaz, Christina AU - Fryer-Edwards, Kelly AU - Green, Shane AU - Hodosh, Marc AU - Juengst, Eric AU - Kaye, Jane AU - Kedes, Laurence AU - Knoppers, Bartha AU - Lemmens, Trudo AU - Meslin, Eric AU - Murphy, Juli AU - Nussbaum, Robert AU - Otlowski, Margaret AU - Pullman, Daryl AU - Ray, Peter AU - Sugarman, Jeremy AU - Timmons, Michael PY - 2008/03/01/ UR - http://dx.doi.org/10.1371/journal.pbio.0060073 ER -