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elsiatcase's Wertz:DC [3 articles]

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	"Testing Children and Adolescents." In A Companion to Genethics (2002), pp. 92-113. by D. C. Wertz edited by J. Burley, J. Harris posted to adolescents children genetic-testing minors by elsiatcase on 2006-10-15 02:31:04 Copy My Attachments My Copy
	Serious genetic disorders: can or should they be defined? Am J Med Genet, Vol. 108, No. 1. (15 February 2002), pp. 29-35. by D. C. Wertz, B. M. Knoppers posted to defining-genetic-conditions-for-purposes-of-law-or-policy genetic-disorders by elsiatcase on 2006-10-06 03:15:12 along with 1 person and 1 group cgreal CGREL Abstract Copy My Attachments My Copy Abstract The word "serious" appears in laws and policies regarding genetics services but is not defined. Genetics professionals would most likely be consulted if definitions are made. We surveyed all U.S. board-certified genetics services providers and all members of the European Society of Human Genetics (ESHG), Canadian College of Medical Geneticists (CCMG), and Ibero-American Society of Human Genetics (IASHG), using anonymous, mailed questionnaires. Respondents were asked to list three conditions they considered lethal, three that were serious but not lethal, and three ...
	Privacy and disclosure in medical genetics examined in an ethics of care. Bioethics, Vol. 5, No. 3. (July 1991), pp. 212-232. by D. C. Wertz, J. C. Fletcher posted to disclosure duty family privacy recontact research results studies to by elsiatcase on 2006-09-20 02:08:04 along with 4 people and 1 group rrwedel ladygoat evoltropia CGREALDisclosure CGREL Abstract Copy My Attachments My Copy Abstract The progress of genetic knowledge magnifies existing ethical problems in medical genetics. Among the most troubling types of problems -- for medicine, patients, and the larger society -- are those of privacy and disclosure. Examples of the range of problems involving privacy and disclosure are: 1) disclosure of false paternity to an unsuspecting husband; 2) disclosure of a patient's genetic make-up to his or her unknowing spouse; 3) disclosure of information, against a patient's wishes, to relatives at genetic ...

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