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Clinical terminology: why is it so hard? Export

Methods of information in medicine, Vol. 38, No. 4-5. (December 1999), pp. 239-252.

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medical-informatics tbmi19 theme3

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Warning: The PDF linked from http://www.cs.manchester.ac.uk/~rector/modules/cds/Why-is-terminology-hard-single-r2.pdf contains a pre-published version with layout different than the published version. I have not compared the text content.

erisu (public note) - 2009-09-15 17:44:07

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Despite years of work, no re-usable clinical terminology has yet been demonstrated in widespread use. This paper puts forward ten reasons why developing such terminologies is hard. All stem from underestimating the change entailed in using terminology in software for 'patient centred' systems rather than for its traditional functions of statistical and financial reporting. Firstly, the increase in scale and complexity are enormous. Secondly, the resulting scale exceeds what can be managed manually with the rigour required by software, but building appropriate rigorous representations on the necessary scale is, in itself, a hard problem. Thirdly, 'clinical pragmatics'--practical data entry, presentation and retrieval for clinical tasks--must be taken into account, so that the intrinsic differences between the needs of users and the needs of software are addressed. This implies that validation of clinical terminologies must include validation in use as implemented in software.


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