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Web-based resources for peer support - opportunities and challenges. Export

Studies in health technology and informatics, Vol. 150 (2009), pp. 302-306.

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Social software and Web 2.0 provides new opportunities for participation and collaborative knowledge construction in peer support and self-care to live well despite transient or permanent health problems. Opportunities include many to many interactions to share and accumulate knowledge and experiences from several perspectives. We are conducting a study to create a collaborative environment for peer support and knowledge construction related to a rare condition. The study draws from participatory design and agile approach to development; extensively using design workshops and iterative prototyping. Several workshops led to systematize perspectives of different participant groups, and provided feedback about functionalities illustrated in different mock-ups and prototypes. Here we report experiences, and focus on feedback from participants leading to special considerations in design of the web-based environment.


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