ETHICS: Identifiability in Genomic Research Export

@article{Lowrance2007a, abstract = {Genomic research can now readily generate data that cover significant portions of the human genome at levels of detail unique to individuals. Data can now be categorized with respect to disease-related genes and linked to clinical, family, and social data. Identifiability, the potential for such data to be associated with specific individuals, is therefore a pivotal concern. Research, health care, police, military, and other DNA and genotype reference collections are growing. Members of the public and its leaders worry about risks of erroneous or malicious identity disclosure and consequent embarrassment; legal or financial ramifications; stigmatization; and/or discrimination for insurance, employment, promotion, or loans.}, author = {Lowrance, William W. and Collins, Francis S.}, citeulike-article-id = {1533302}, citeulike-linkout-0 = {http://dx.doi.org/10.1126/science.1147699}, citeulike-linkout-1 = {http://www.sciencemag.org/cgi/content/abstract/317/5838/600}, citeulike-linkout-2 = {http://view.ncbi.nlm.nih.gov/pubmed/17673640}, citeulike-linkout-3 = {http://www.hubmed.org/display.cgi?uids=17673640}, day = {3}, doi = {10.1126/science.1147699}, journal = {Science}, keywords = {anonymity, confidentiality, deidentification, deidentified, disclosure, identifiability, policy, privacy}, month = {August}, number = {5838}, pages = {600--602}, posted-at = {2007-10-14 20:26:43}, priority = {0}, title = {ETHICS: Identifiability in Genomic Research}, url = {http://dx.doi.org/10.1126/science.1147699}, volume = {317}, year = {2007} }

TY - JOUR ID - Lowrance2007a L3 - citeulike-article-id:1533302 N2 - Genomic research can now readily generate data that cover significant portions of the human genome at levels of detail unique to individuals. Data can now be categorized with respect to disease-related genes and linked to clinical, family, and social data. Identifiability, the potential for such data to be associated with specific individuals, is therefore a pivotal concern. Research, health care, police, military, and other DNA and genotype reference collections are growing. Members of the public and its leaders worry about risks of erroneous or malicious identity disclosure and consequent embarrassment; legal or financial ramifications; stigmatization; and/or discrimination for insurance, employment, promotion, or loans. IS - 5838 JF - Science EP - 602 TI - ETHICS: Identifiability in Genomic Research VL - 317 SP - 600 KW - anonymity KW - confidentiality KW - deidentification KW - deidentified KW - disclosure KW - identifiability KW - policy KW - privacy AU - Lowrance, William AU - Collins, Francis PY - 2007/08/03/ UR - http://dx.doi.org/10.1126/science.1147699 ER -