"It's like Tuskegee in reverse": a case study of ethical tensions in institutional review board review of community-based participatory research. Export

@article{citeulike:2152975, abstract = {Community-based participatory research (CBPR) addresses the social justice dimensions of health disparities by engaging marginalized communities, building capacity for action, and encouraging more egalitarian relationships between researchers and communities. CBPR may challenge institutionalized academic practices and the understandings that inform institutional review board deliberations and, indirectly, prioritize particular kinds of research. We present our attempt to study, as part of a CBPR partnership, cigarette sales practices in an inner-city community. We use critical and communitarian perspectives to examine the implications of the refusal of the university institutional review board (in this case, the University of California, San Francisco) to approve the study. CBPR requires expanding ethical discourse beyond the procedural, principle-based approaches common in biomedical research settings. The current ethics culture of academia may sometimes serve to protect institutional power at the expense of community empowerment.}, address = {Department of Social and Behavioral Sciences, School of Nursing, University of California, San Francisco, CA 94143-0612, USA. ruth.malone@ucsf.edu}, author = {Malone, R. E. and Yerger, V. B. and McGruder, C. and Froelicher, E.}, citeulike-article-id = {2152975}, citeulike-linkout-0 = {http://dx.doi.org/10.2105/AJPH.2005.082172}, citeulike-linkout-1 = {http://view.ncbi.nlm.nih.gov/pubmed/17018816}, citeulike-linkout-2 = {http://www.hubmed.org/display.cgi?uids=17018816}, doi = {10.2105/AJPH.2005.082172}, issn = {1541-0048}, journal = {Am J Public Health}, keywords = {cbr, community, elsi, irb, participatory-research}, month = {November}, number = {11}, pages = {1914--1919}, posted-at = {2007-12-20 20:35:38}, priority = {4}, title = {"It's like Tuskegee in reverse": a case study of ethical tensions in institutional review board review of community-based participatory research.}, url = {http://dx.doi.org/10.2105/AJPH.2005.082172}, volume = {96}, year = {2006} }

TY - JOUR ID - citeulike:2152975 L3 - citeulike-article-id:2152975 N2 - Community-based participatory research (CBPR) addresses the social justice dimensions of health disparities by engaging marginalized communities, building capacity for action, and encouraging more egalitarian relationships between researchers and communities. CBPR may challenge institutionalized academic practices and the understandings that inform institutional review board deliberations and, indirectly, prioritize particular kinds of research. We present our attempt to study, as part of a CBPR partnership, cigarette sales practices in an inner-city community. We use critical and communitarian perspectives to examine the implications of the refusal of the university institutional review board (in this case, the University of California, San Francisco) to approve the study. CBPR requires expanding ethical discourse beyond the procedural, principle-based approaches common in biomedical research settings. The current ethics culture of academia may sometimes serve to protect institutional power at the expense of community empowerment. IS - 11 JF - Am J Public Health SN - 1541-0048 AD - Department of Social and Behavioral Sciences, School of Nursing, University of California, San Francisco, CA 94143-0612, USA. ruth.malone@ucsf.edu EP - 1919 TI - "It's like Tuskegee in reverse": a case study of ethical tensions in institutional review board review of community-based participatory research. VL - 96 SP - 1914 KW - cbr KW - community KW - elsi KW - irb KW - participatory-research AU - Malone, RE AU - Yerger, VB AU - McGruder, C AU - Froelicher, E PY - 2006/11// UR - http://dx.doi.org/10.2105/AJPH.2005.082172 ER -