From genetic privacy to open consent. Export

@article{citeulike:2624228, abstract = {Recent advances in high-throughput genomic technologies are showing concrete results in the form of an increasing number of genome-wide association studies and in the publication of comprehensive individual genome-phenome data sets. As a consequence of this flood of information the established concepts of research ethics are stretched to their limits, and issues of privacy, confidentiality and consent for research are being re-examined. Here, we show the feasibility of the co-development of scientific innovation and ethics, using the open-consent framework that was implemented in the Personal Genome Project as an example.}, address = {Jeantine E. Lunshof is at the Department of Molecular Cell Physiology, c/o room M236, Faculty of Earth and Life Sciences, VU University Amsterdam, De Boelelaan 1085, 1081 HV Amsterdam, The Netherlands.}, author = {Lunshof, Jeantine E. and Chadwick, Ruth and Vorhaus, Daniel B. and Church, George M.}, citeulike-article-id = {2624228}, citeulike-linkout-0 = {http://dx.doi.org/10.1038/nrg2360}, citeulike-linkout-1 = {http://dx.doi.org/10.1038/nrg2360}, citeulike-linkout-2 = {http://view.ncbi.nlm.nih.gov/pubmed/18379574}, citeulike-linkout-3 = {http://www.hubmed.org/display.cgi?uids=18379574}, day = {1}, doi = {10.1038/nrg2360}, issn = {1471-0064}, journal = {Nature reviews. Genetics}, keywords = {consent, elsi, open-consent, privacy}, month = {May}, number = {5}, pages = {406--411}, posted-at = {2008-04-02 19:48:45}, priority = {0}, title = {From genetic privacy to open consent.}, url = {http://dx.doi.org/10.1038/nrg2360}, volume = {9}, year = {2008} }

TY - JOUR ID - citeulike:2624228 L3 - citeulike-article-id:2624228 N2 - Recent advances in high-throughput genomic technologies are showing concrete results in the form of an increasing number of genome-wide association studies and in the publication of comprehensive individual genome-phenome data sets. As a consequence of this flood of information the established concepts of research ethics are stretched to their limits, and issues of privacy, confidentiality and consent for research are being re-examined. Here, we show the feasibility of the co-development of scientific innovation and ethics, using the open-consent framework that was implemented in the Personal Genome Project as an example. IS - 5 JF - Nature reviews. Genetics SN - 1471-0064 AD - Jeantine E. Lunshof is at the Department of Molecular Cell Physiology, c/o room M236, Faculty of Earth and Life Sciences, VU University Amsterdam, De Boelelaan 1085, 1081 HV Amsterdam, The Netherlands. EP - 411 TI - From genetic privacy to open consent. VL - 9 SP - 406 KW - consent KW - elsi KW - open-consent KW - privacy AU - Lunshof, Jeantine AU - Chadwick, Ruth AU - Vorhaus, Daniel AU - Church, George PY - 2008/05/01/ UR - http://dx.doi.org/10.1038/nrg2360 ER -