Certificates of confidentiality: a valuable tool for protecting genetic data. Export

@article{citeulike:3690, abstract = {Protecting the confidentiality of genetic research data is an important aspect of genetic research that has been discussed in various forums. Research data must be protected to prevent discrimination and its use in litigation. The certificate of confidentiality was created to protect the subjects of alcohol- and drug-abuse studies, who may be engaging in illegal activities. As revised in 1988, the certificate protects investigators engaging in other kinds of studies from being compelled to reveal information about subjects. Because the certificate protects information that could damage a subject's financial or social standing or employability, it is an appropriate tool to use to maintain the confidentiality of genetic data. The Department of Health and Human Services issues the certificates; the procedure for applying for a certificate of confidentiality is presented.}, address = {Department of Experimental Pediatrics, University of Texas M. D. Anderson Cancer Center, Houston 77030, USA.}, author = {Earley, C. L. and Strong, L. C.}, citeulike-article-id = {3690}, citeulike-linkout-0 = {http://view.ncbi.nlm.nih.gov/pubmed/7668302}, citeulike-linkout-1 = {http://www.hubmed.org/display.cgi?uids=7668302}, issn = {0002-9297}, journal = {Am J Hum Genet}, keywords = {coc, compelleddisclosure, disclosure, discrimination, genetics, privacy}, month = {September}, number = {3}, pages = {727--731}, posted-at = {2007-12-13 02:17:47}, priority = {4}, title = {Certificates of confidentiality: a valuable tool for protecting genetic data.}, url = {http://view.ncbi.nlm.nih.gov/pubmed/7668302}, volume = {57}, year = {1995} }

TY - JOUR ID - citeulike:3690 L3 - citeulike-article-id:3690 N2 - Protecting the confidentiality of genetic research data is an important aspect of genetic research that has been discussed in various forums. Research data must be protected to prevent discrimination and its use in litigation. The certificate of confidentiality was created to protect the subjects of alcohol- and drug-abuse studies, who may be engaging in illegal activities. As revised in 1988, the certificate protects investigators engaging in other kinds of studies from being compelled to reveal information about subjects. Because the certificate protects information that could damage a subject's financial or social standing or employability, it is an appropriate tool to use to maintain the confidentiality of genetic data. The Department of Health and Human Services issues the certificates; the procedure for applying for a certificate of confidentiality is presented. IS - 3 JF - Am J Hum Genet SN - 0002-9297 AD - Department of Experimental Pediatrics, University of Texas M. D. Anderson Cancer Center, Houston 77030, USA. EP - 731 TI - Certificates of confidentiality: a valuable tool for protecting genetic data. VL - 57 SP - 727 KW - coc KW - compelleddisclosure KW - disclosure KW - discrimination KW - genetics KW - privacy AU - Earley, CL AU - Strong, LC PY - 1995/09// UR - http://view.ncbi.nlm.nih.gov/pubmed/7668302 ER -