Genetic research on stored tissue samples from minors: A systematic review of the ethical literature Export

@article{citeulike:6011922, abstract = {The potential benefits of biobank research are well known. Also, the ethical implications of genetic research on stored tissue samples are well discussed in existing literature. The inclusion of tissue samples from minors may have significant scientific value. However, this inclusion raises specific ethical questions. We have performed a systematic search of the literature and found 21 theoretical and empirical articles dealing with the issue. After review, we distilled five clusters of themes: consent, risks, benefits, return of results, and ownership. We have described the different components of these themes, as they occurred in the literature and have provided a discourse on the topic. {\copyright} 2009 Wiley-Liss, Inc.}, address = {Katholieke Universiteit Leuven, Centre for Biomedical Ethics and Law, Leuven, Belgium; Katholieke Universiteit Leuven, Departement Menselijke Erfelijkheid, Leuven, Belgium}, author = {Hens, Kristien and Nys, Herman and Cassiman, Jean-Jacques and Dierickx, Kris}, citeulike-article-id = {6011922}, citeulike-linkout-0 = {http://dx.doi.org/10.1002/ajmg.a.33032}, citeulike-linkout-1 = {http://view.ncbi.nlm.nih.gov/pubmed/19764035}, citeulike-linkout-2 = {http://www.hubmed.org/display.cgi?uids=19764035}, citeulike-linkout-3 = {http://www3.interscience.wiley.com/cgi-bin/abstract/122600046/ABSTRACT}, comment = {posted by ginny}, doi = {10.1002/ajmg.a.33032}, issn = {1552-4833}, journal = {American Journal of Medical Genetics Part A}, keywords = {confidentiality, ethics}, month = {October}, number = {10}, pages = {2346--2358}, posted-at = {2009-10-28 10:34:27}, priority = {2}, title = {Genetic research on stored tissue samples from minors: A systematic review of the ethical literature}, url = {http://dx.doi.org/10.1002/ajmg.a.33032}, volume = {149A}, year = {2009} }

TY - JOUR ID - citeulike:6011922 L3 - citeulike-article-id:6011922 N2 - The potential benefits of biobank research are well known. Also, the ethical implications of genetic research on stored tissue samples are well discussed in existing literature. The inclusion of tissue samples from minors may have significant scientific value. However, this inclusion raises specific ethical questions. We have performed a systematic search of the literature and found 21 theoretical and empirical articles dealing with the issue. After review, we distilled five clusters of themes: consent, risks, benefits, return of results, and ownership. We have described the different components of these themes, as they occurred in the literature and have provided a discourse on the topic. © 2009 Wiley-Liss, Inc. IS - 10 JF - American Journal of Medical Genetics Part A SN - 1552-4833 AD - Katholieke Universiteit Leuven, Centre for Biomedical Ethics and Law, Leuven, Belgium; Katholieke Universiteit Leuven, Departement Menselijke Erfelijkheid, Leuven, Belgium EP - 2358 TI - Genetic research on stored tissue samples from minors: A systematic review of the ethical literature VL - 149A SP - 2346 KW - confidentiality KW - ethics N1 - posted by ginny AU - Hens, Kristien AU - Nys, Herman AU - Cassiman, Jean-Jacques AU - Dierickx, Kris PY - 2009/10// UR - http://dx.doi.org/10.1002/ajmg.a.33032 ER -