Family participation in care to the critically ill: opinions of families and staff. Export

@article{citeulike:2706345, abstract = {BACKGROUND: Allowing family members to participate in the care of patients in intensive care units (ICUs) may improve the quality of their experience. No previous study has investigated opinions about family participation in ICUs. METHODS: Prospective multicenter survey in 78 ICUs (1,184 beds) in France involving 2,754 ICU caregivers and 544 family members of 357 consecutive patients. We determined opinions and experience about family participation in care; comprehension (of diagnosis, prognosis, and treatment) and satisfaction (Critical Care Family Needs Inventory) scores to assess the effectiveness of information to families and the Hospital Anxiety and Depression score for family members. RESULTS: Among caregivers 88.2\% felt that participation in care should be offered to families. Only 33.4\% of family members wanted to participate in care. Independent predictors of this desire fell into three groups: patient-related (SAPS II at ICU admission, OR 0.984); ICU stay length, OR 1.021), family-related (family member age, OR 0.97/year); family not of European descent, OR 0.294); previous ICU experience in the family, OR 1.59), and those related to emotional burden and effectiveness of information provided to family members (symptoms of depression in family members, OR 1.58); more time wanted for information, OR 1.06). CONCLUSIONS: Most ICU caregivers are willing to invite family members to participate in patient care, but most family members would decline.}, address = {Service de R\'{e}animation M\'{e}dicale, H\^{o}pital Saint-Louis, 1 Avenue Claude Vellefaux, 75010 Paris, France. elie.azoulay@sls.ap-hop-paris.fr}, author = {Azoulay, E. and Pochard, F. and Chevret, S. and Arich, C. and Brivet, F. and Brun, F. and Charles, P. E. and Desmettre, T. and Dubois, D. and Galliot, R. and Garrouste-Orgeas, M. and Goldgran-Toledano, D. and Herbecq, P. and Joly, L. M. and Jourdain, M. and Kaidomar, M. and Lepape, A. and Letellier, N. and Marie, O. and Page, B. and Parrot, A. and Rodie-Talbere, P. A. and Sermet, A. and Tenaillon, A. and Thuong, M. and Tulasne, P. and Le Gall, J. R. and Schlemmer, B. and {}}, citeulike-article-id = {2706345}, citeulike-linkout-0 = {http://dx.doi.org/10.1007/s00134-003-1904-y}, citeulike-linkout-1 = {http://view.ncbi.nlm.nih.gov/pubmed/12856124}, citeulike-linkout-2 = {http://www.hubmed.org/display.cgi?uids=12856124}, doi = {10.1007/s00134-003-1904-y}, issn = {0342-4642}, journal = {Intensive care medicine}, keywords = {surrogate}, month = {September}, number = {9}, pages = {1498--1504}, posted-at = {2008-04-23 08:33:08}, priority = {2}, title = {Family participation in care to the critically ill: opinions of families and staff.}, url = {http://dx.doi.org/10.1007/s00134-003-1904-y}, volume = {29}, year = {2003} }

TY - JOUR ID - citeulike:2706345 L3 - citeulike-article-id:2706345 N2 - BACKGROUND: Allowing family members to participate in the care of patients in intensive care units (ICUs) may improve the quality of their experience. No previous study has investigated opinions about family participation in ICUs. METHODS: Prospective multicenter survey in 78 ICUs (1,184 beds) in France involving 2,754 ICU caregivers and 544 family members of 357 consecutive patients. We determined opinions and experience about family participation in care; comprehension (of diagnosis, prognosis, and treatment) and satisfaction (Critical Care Family Needs Inventory) scores to assess the effectiveness of information to families and the Hospital Anxiety and Depression score for family members. RESULTS: Among caregivers 88.2% felt that participation in care should be offered to families. Only 33.4% of family members wanted to participate in care. Independent predictors of this desire fell into three groups: patient-related (SAPS II at ICU admission, OR 0.984); ICU stay length, OR 1.021), family-related (family member age, OR 0.97/year); family not of European descent, OR 0.294); previous ICU experience in the family, OR 1.59), and those related to emotional burden and effectiveness of information provided to family members (symptoms of depression in family members, OR 1.58); more time wanted for information, OR 1.06). CONCLUSIONS: Most ICU caregivers are willing to invite family members to participate in patient care, but most family members would decline. IS - 9 JF - Intensive care medicine SN - 0342-4642 AD - Service de Réanimation Médicale, Hôpital Saint-Louis, 1 Avenue Claude Vellefaux, 75010 Paris, France. elie.azoulay@sls.ap-hop-paris.fr EP - 1504 TI - Family participation in care to the critically ill: opinions of families and staff. VL - 29 SP - 1498 KW - surrogate AU - Azoulay, E AU - Pochard, F AU - Chevret, S AU - Arich, C AU - Brivet, F AU - Brun, F AU - Charles, PE AU - Desmettre, T AU - Dubois, D AU - Galliot, R AU - Garrouste-Orgeas, M AU - Goldgran-Toledano, D AU - Herbecq, P AU - Joly, LM AU - Jourdain, M AU - Kaidomar, M AU - Lepape, A AU - Letellier, N AU - Marie, O AU - Page, B AU - Parrot, A AU - Rodie-Talbere, PA AU - Sermet, A AU - Tenaillon, A AU - Thuong, M AU - Tulasne, P AU - Le Gall, JR AU - Schlemmer, B PY - 2003/09// UR - http://dx.doi.org/10.1007/s00134-003-1904-y ER -