Race and ethnicity in genetic research Export

@article{citeulike:1247992, abstract = {Use of race and ethnicity terms in genetic research continues to generate controversy. Despite differing opinions about their basis or relevance, there is some agreement that investigators using these terms should: explain why the terms or categories were used, define them carefully, and apply them consistently. An important question is whether these recommendations are reflected in practice. Here we addressed this question based on 330 randomly selected articles published between 2001 and 2004 that reported on genetic research and used one or more words from a defined list of race, ethnicity, or population terms. The recommendation that authors using race or ethnicity terms explain the basis for assigning them to study populations was met infrequently (9.1\%), and articles that used race and ethnicity as variables were no more likely than those that used them only to label a sample to provide these details. No article defined or discussed the concepts of race or ethnicity. With limited exceptions, current practice does not reflect repeated recommendations for using race or ethnicity terms in genetic research. This study provides a baseline against which to measure future trends. {\copyright} 2007 Wiley-Liss, Inc.}, address = {Department of Medical Ethics; Center for Bioethics; Leonard Davis Institute for Health Economics, University of Pennsylvania, Philadelphia, Pennsylvania; Stanford Center for Biomedical Ethics, Stanford University, Stanford, California; Department of Anthropological Sciences and Department of Genetics, Stanford University, Stanford, California}, author = {Sankar, Pamela and Cho, Mildred K. and Mountain, Joanna}, citeulike-article-id = {1247992}, citeulike-linkout-0 = {http://dx.doi.org/10.1002/ajmg.a.31575}, citeulike-linkout-1 = {http://view.ncbi.nlm.nih.gov/pubmed/17345638}, citeulike-linkout-2 = {http://www.hubmed.org/display.cgi?uids=17345638}, citeulike-linkout-3 = {http://www3.interscience.wiley.com/cgi-bin/abstract/114174052/ABSTRACT}, citeulike-linkout-4 = {http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=17345638}, doi = {10.1002/ajmg.a.31575}, journal = {American Journal of Medical Genetics Part A}, keywords = {conduct-of-research, ethics, ethnicity, human-genetics, race}, number = {9}, pages = {961--970}, posted-at = {2009-03-01 22:09:30}, priority = {5}, title = {Race and ethnicity in genetic research}, url = {http://dx.doi.org/10.1002/ajmg.a.31575}, volume = {143A}, year = {2007} }

TY - JOUR ID - citeulike:1247992 L3 - citeulike-article-id:1247992 N2 - Use of race and ethnicity terms in genetic research continues to generate controversy. Despite differing opinions about their basis or relevance, there is some agreement that investigators using these terms should: explain why the terms or categories were used, define them carefully, and apply them consistently. An important question is whether these recommendations are reflected in practice. Here we addressed this question based on 330 randomly selected articles published between 2001 and 2004 that reported on genetic research and used one or more words from a defined list of race, ethnicity, or population terms. The recommendation that authors using race or ethnicity terms explain the basis for assigning them to study populations was met infrequently (9.1%), and articles that used race and ethnicity as variables were no more likely than those that used them only to label a sample to provide these details. No article defined or discussed the concepts of race or ethnicity. With limited exceptions, current practice does not reflect repeated recommendations for using race or ethnicity terms in genetic research. This study provides a baseline against which to measure future trends. © 2007 Wiley-Liss, Inc. IS - 9 JF - American Journal of Medical Genetics Part A AD - Department of Medical Ethics; Center for Bioethics; Leonard Davis Institute for Health Economics, University of Pennsylvania, Philadelphia, Pennsylvania; Stanford Center for Biomedical Ethics, Stanford University, Stanford, California; Department of Anthropological Sciences and Department of Genetics, Stanford University, Stanford, California EP - 970 TI - Race and ethnicity in genetic research VL - 143A SP - 961 KW - conduct-of-research KW - ethics KW - ethnicity KW - human-genetics KW - race AU - Sankar, Pamela AU - Cho, Mildred AU - Mountain, Joanna PY - 2007/// UR - http://dx.doi.org/10.1002/ajmg.a.31575 ER -